tag:blogger.com,1999:blog-88314635919886997412024-02-07T23:07:00.237+05:30Fibromyalgia Awareness | Information, Tips, Support, Patient StoriesDedicated to raise awareness about Fibromyalgia and offer online support. Find fibromyalgia information, news, interviews and tips. annucool15http://www.blogger.com/profile/15277364271322867834noreply@blogger.comBlogger134125tag:blogger.com,1999:blog-8831463591988699741.post-78646306903684499882020-05-31T15:59:00.001+05:302020-05-31T16:08:53.507+05:30When being strong is the only choice
How do you react when someone compliments you on being strong? Sometimes I just smile. And often, deep inside me something hurts when I hear those words. The thought that I just want to have some strength to do the things that I could do earlier and not this mental strength crucial to 'fight' my illness. Because, frankly, I don't exactly fight my chronic illness. I coexist with it. It dominatesannucool15http://www.blogger.com/profile/15277364271322867834noreply@blogger.com0tag:blogger.com,1999:blog-8831463591988699741.post-42915479208496687872017-09-30T09:39:00.000+05:302018-01-03T18:49:24.469+05:30Fibromyalgia Patient Interview: Desiree Robinson
Support of spouse, family and friends makes a whole lot of difference when it comes to dealing with chronic illness. Here's the story of fibromyalgia warrior Desiree Robinson who put her creativity skills and photography together to bring awareness about the condition with a video. Please read and share her story and the video to help her in her initiative.
Also remember, all annucool15http://www.blogger.com/profile/15277364271322867834noreply@blogger.com0tag:blogger.com,1999:blog-8831463591988699741.post-29657983253716806392017-09-30T09:38:00.000+05:302018-01-03T18:50:03.246+05:30Miracle cure articles and ads disappointing Fibromyalgia warriors
PLEASE DON'T FALL PREY TO MIRACLE CREAM, MIRACLE CURE AND SUCH ARTICLES, ADS AND VIDEOS.
And try not to stress when they post things like a woman was cured by a cheap cream!
This is in response to a fibro friend who is so furious, and so am I, after seeing an article link on a popular website. And I am not posting that link as I don't want to give any publicity to a fake product or the woman annucool15http://www.blogger.com/profile/15277364271322867834noreply@blogger.com0tag:blogger.com,1999:blog-8831463591988699741.post-12492276746789972972017-05-12T21:51:00.003+05:302018-01-03T18:50:42.165+05:3050 Activities / Things that #hurtwithfibromyalgia
Several things hurt most Fibromyalgia warriors on a daily basis.
While a handful of patients are able to manage the condition somehow, most have
unbearable pain and many other symptoms 24x7. Listing some things that are
painful for most Fibromyalgia warriors - a quick reference for the #hurtswithfibromyalgiachallenge.
1. Getting out of the bed
2. Sleeping
annucool15http://www.blogger.com/profile/15277364271322867834noreply@blogger.com1tag:blogger.com,1999:blog-8831463591988699741.post-62825744518434506972017-05-11T21:34:00.001+05:302017-05-12T21:54:57.579+05:30#HurtsWithFibromyalgia Challenge
#HurtsWithFibromyalgia ChallengeThe easiest challenge ever for the most complicated invisible illness.
12th May is International Fibromyalgia Awareness Day. Have you and your friends heard about Fibromyalgia? Do you know that it is incurable and invisible? Do you know what exactly it is?
Fibromyalgia warriors across the world are suffering every minute. The 24x7 torture by the illness isannucool15http://www.blogger.com/profile/15277364271322867834noreply@blogger.com0tag:blogger.com,1999:blog-8831463591988699741.post-90606571423184816592016-09-20T14:01:00.000+05:302016-11-24T19:48:32.497+05:30A fresh cup of tea
She woke up early in the morning and made herself a fresh cup of tea. Feeling refreshed, she went for a jog and returned in an hour. She decided to prepare a four-course meal for the guests arriving for lunch. She was quite excited about the eventful day as they had planned a trek in the woods.
She woke up for the 3rd time in the middle of the night and was glad that she doesn't have #annucool15http://www.blogger.com/profile/15277364271322867834noreply@blogger.com1tag:blogger.com,1999:blog-8831463591988699741.post-78887704369468946842016-04-23T01:45:00.003+05:302016-05-06T11:46:51.766+05:30The F word
The F word.
Used by a few.
Hated by many.
Ignored by some.
Misinterpreted aplenty.
The F word.
Makes people judge people.
Makes people discriminate people.
Makes people respect people.
Makes people inspire people.
The F word.
For many, it stands for #Fibromyalgia.
For many, it's not just a word.
It's a life changing curse.
It's hell of a world.
Some manage somehow.
Some struggle to cope.
annucool15http://www.blogger.com/profile/15277364271322867834noreply@blogger.com0tag:blogger.com,1999:blog-8831463591988699741.post-83902603225442970262016-03-15T19:58:00.000+05:302019-12-27T08:32:01.407+05:30 10 Things To Consider When You Have Chronic Illness
If you have a chronic illness, I am certain there was a time when you were very active and managed to do just about everything in a day. It's tough to come to terms with the limited abilities of our body. So while it's considered good to push ourselves, we must ascertain that we do not do so in a way that harms us. Like in the case of fibromyalgia.
The key mantra is - LISTEN TO YOUR BODY!
annucool15http://www.blogger.com/profile/15277364271322867834noreply@blogger.com2tag:blogger.com,1999:blog-8831463591988699741.post-11535651860392684222015-08-06T22:19:00.001+05:302015-08-10T14:34:04.758+05:30Fibromyalgia Warrior Desiree Robinson's Interview and her Fibromyalgia Video
Support of spouse, family and friends makes a whole lot of difference when it comes to dealing with chronic illness. Here's the story / interview of fibromyalgia warrior Desiree Robinson who put her creativity skills and photography together to bring awareness about the condition with a video. Please read and share her story and the video to help her in her initiative.
Also remember, annucool15http://www.blogger.com/profile/15277364271322867834noreply@blogger.com0tag:blogger.com,1999:blog-8831463591988699741.post-80714442460756473752015-08-04T20:03:00.000+05:302015-08-04T20:03:04.225+05:30Broken but determined
Came across this pretty butterfly with a broken wing yesterday. It was a
delight to watch it as it seemed to say "My wings might be broken, but
they won’t break me!" Yes, we won't be able to fly much with #fibromyalgia, but we'll make the most of life with a smile on our face!
annucool15http://www.blogger.com/profile/15277364271322867834noreply@blogger.com0tag:blogger.com,1999:blog-8831463591988699741.post-61613708433201526102015-06-26T10:19:00.000+05:302015-07-05T19:05:24.385+05:30Fibromyalgia Guest Post by Louise Willis
Hi Fibro-Folks
Always wanted to set up a Blog but don't know how - so guest Blogging looks like a first step.
Let me tell you about me - I'm 47 - female and wheelchair bound. Married with two doggies.
I
have the condition called Fibromyalgia. The way it's been described to
me is my brain fails to process pain signals in the same way as others.
This means I suffer pain on a dailyannucool15http://www.blogger.com/profile/15277364271322867834noreply@blogger.com0tag:blogger.com,1999:blog-8831463591988699741.post-34833002155007072072015-06-17T09:53:00.002+05:302015-07-05T19:05:33.262+05:30Fibromyalgia Awareness Guest Blog Posts
Fibromyalgia, that affects millions worldwide, still lacks awareness. This leads to fibromyalgia patients, rightly called as fibromyalgia warriors, fighting not just the illness but also the ignorance and indifference. The lack of awareness is adversely impacting the lives of patients worldwide, especially in countries like India where most people have not even heard the name of the invisibleannucool15http://www.blogger.com/profile/15277364271322867834noreply@blogger.com0tag:blogger.com,1999:blog-8831463591988699741.post-43198958341006003632015-05-19T09:44:00.000+05:302015-05-19T10:00:02.310+05:30Caring for the Caretakers
For all those who have a chronic illness and a supportive partner, family or friend:
Remember, they are doing their best to help you. So they are doing more than what the partners, families and friends of healthy people are doing. Most of the times they don't say it. But remember, they are exerted too. Coz seeing a loved one in pain that will not go away is very disturbing. Also, doing annucool15http://www.blogger.com/profile/15277364271322867834noreply@blogger.com1tag:blogger.com,1999:blog-8831463591988699741.post-2439865258319853082015-05-13T10:20:00.000+05:302019-03-08T09:33:57.605+05:30Story of a Fibromyalgia Patient
Meet Amy (name changed on request), a Fibromyalgia warrior who shares her story and personal tips on living with fibromyalgia.
Year when symptoms started: 2010Diagnosed in: 20131. What's your story? How and when were you diagnosed with Fibromyalgia? Were you misdiagnosed at the start? My onset was sudden. My childhood dog passed away over spring break my sophomore year of undergrad. A annucool15http://www.blogger.com/profile/15277364271322867834noreply@blogger.com5tag:blogger.com,1999:blog-8831463591988699741.post-42860942199035388412015-05-04T11:42:00.002+05:302015-05-04T11:43:39.143+05:30Something Purple on Fibromyalgia Awareness Day
The Something Purple campaign to mark the Fibromyalgia Awareness Day on 12th May is back!
Millions of people suffer from fibromyalgia that is aptly called Invisible Illness. Yet, there is lack of awareness in most places.
This Fibromyalgia Awareness Day, 12th May 2015, let's have Something Purple to support awareness. Here's a poem on some tips. Just have Something Purple, click a pic annucool15http://www.blogger.com/profile/15277364271322867834noreply@blogger.com0tag:blogger.com,1999:blog-8831463591988699741.post-24707895769009999362015-03-16T09:29:00.004+05:302015-04-22T10:49:44.208+05:3011 Tips to plan a day out when you have #Fibromyalgia
With Fibromyalgia, stepping out everyday is not possible for every warrior. Yet, there are days when you want to step out and get some fresh air. Be it your birthday, an anniversary, a little picnic or even grocery shopping, it's a special occasion when a fibromyalgfia warrior needs to spend the entire day out of home.
Here are 11 Tips to smartly plan a day out when you have #annucool15http://www.blogger.com/profile/15277364271322867834noreply@blogger.com7tag:blogger.com,1999:blog-8831463591988699741.post-38443274247377459052015-03-11T19:09:00.000+05:302015-04-22T10:50:23.977+05:30Are you unknowingly torturing someone with Fibromyalgia?
If you know someone with Fibromyalgia, please understand that those with this illness have difficulty doing certain things which appear too easy to you. There are some days they can manage even with extreme pain, but most days, they simply can't. Yet, if you say that you want them to do something, they might go out of their way to do it and spoil their symptoms further. And the fact is that annucool15http://www.blogger.com/profile/15277364271322867834noreply@blogger.com3tag:blogger.com,1999:blog-8831463591988699741.post-20627866394546229892015-02-27T09:21:00.000+05:302015-02-27T11:33:05.410+05:30Let me look good | Poem
We, with invisible illnesses, don't and we won't look sick. So the day we feel a bit better, we dress up for ourselves, wear that smile and do what we like.
We hope people take those with invisible illnesses seriously.
Here's a list of some invisible illnesses:
Allergies
Attention Deficit Disorder and ADHD
Arachnoiditis
Asperger Syndrome
Asthma
Cancer
Celiac
Chronic Fatigue annucool15http://www.blogger.com/profile/15277364271322867834noreply@blogger.com0tag:blogger.com,1999:blog-8831463591988699741.post-90702692052084034112015-02-19T13:09:00.000+05:302015-04-22T10:52:24.012+05:30Taking the #FibromyalgiaPalmChallenge to the next level
Do you know a celebrity personally? An actor, author, musician, painter, mayor, senator, dancer, singer, speaker...? Someone who can take the #FibromyalgiaPalmChallenge, tag others and help us reach the next stage? Can you ask them to take the challenge and encourage others to do so?
OR
If you work in an organisation where the boss understands and supports you, can you try if the entire annucool15http://www.blogger.com/profile/15277364271322867834noreply@blogger.com0tag:blogger.com,1999:blog-8831463591988699741.post-49054333984524936412015-02-02T14:43:00.005+05:302015-02-02T14:51:39.193+05:30Valentine's Day True Love Contest 2015
We are glad to announce and invite entries from Fibromyalgia Warriors for the third year of our Valentine's Month contest. The True Love Contest 2015 is a lovely contest just for those who have Fibromyalgia!
This year, we will announce winners in Two Categories, both of which involve Tagging your friends / family / acquaintances on Facebook
Category 1: Express & Tag (words or annucool15http://www.blogger.com/profile/15277364271322867834noreply@blogger.com0tag:blogger.com,1999:blog-8831463591988699741.post-46907056548861477692015-01-20T14:01:00.000+05:302015-01-20T14:16:07.467+05:30Fibromyalgia Patient Interview / Story 7: Brandi Clevinger
Name: Brandi Clevinger
Gender: Female | Age: 33
Location: (City / State / Country): Charleston, South Carolina, USA
Occupation: Stay at Home Mom, Blogger
Kind of occupation: Full Time
Year when symptoms started: Summer 2006
Diagnosed in: Winter 2012
Marital Status: Married
What's your story? How and when were you diagnosed with Fibromyalgia? Were you misdiagnosed at the start?
In the annucool15http://www.blogger.com/profile/15277364271322867834noreply@blogger.com2tag:blogger.com,1999:blog-8831463591988699741.post-5869245220800518002015-01-07T14:40:00.001+05:302015-01-20T14:16:37.330+05:30Short Stories - Reminder Notes
Janice knew that look. She hated it. The slightly raised eyebrows, the slightly tilted head and that rather long glare made her feel like disappearing immediately. That accusatory look was not new to her. She never lied. Why should she? But she forgot things, not all, but a few. The ones that she should not forget. The ones that involved those people who were not so understanding. She had also annucool15http://www.blogger.com/profile/15277364271322867834noreply@blogger.com0tag:blogger.com,1999:blog-8831463591988699741.post-29241306181586430422014-12-11T14:03:00.000+05:302015-01-20T14:17:10.574+05:30Fibromyalgia Palm Challenge - Photo Album A
This is a collage of the palm photos submitted by those whose names begin with the letter A.
Fibromyalgia Palm Challenge is an initiative to raise awareness about Fibromyalgia. I hope that each one of you watching this video take the challenge and tag as many people as possible to make this 'Invisible Illness' Visible to the world.
You can read all about fibromyalgia on this website.Submitannucool15http://www.blogger.com/profile/15277364271322867834noreply@blogger.com0tag:blogger.com,1999:blog-8831463591988699741.post-6677454944864865432014-12-09T23:17:00.001+05:302015-01-20T14:21:06.797+05:30Patient Solidarity Day Event in Mumbai
I am glad to get the opportunity to speak on the occasion of Patient
Solidarity Day, thanks to Mr Bejon Misra, and put forth my points to improve healthcare in India.
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What is Patient Solidarity Day?
Imagine the power of an initiative when patients from across the world come together in solidarity to make their voice heard and to support each other.
Imagine a day when patients, health activists and organisations unite to ensure
that every single person in the world has fair and impartial access to
quality healthcare.
That day has arrived!
The day whenannucool15http://www.blogger.com/profile/15277364271322867834noreply@blogger.com0