Fibromyalgia Awareness | Information, Tips, Support, Patient Stories

Dedicated to raise awareness about Fibromyalgia and offer online support. Find fibromyalgia information, news, interviews and tips.

Fibromyalgia Warrior Desiree Robinson's Interview and her Fibromyalgia Video




Support of spouse, family and friends makes a whole lot of difference when it comes to dealing with chronic illness. Here's the story / interview of fibromyalgia warrior  Desiree Robinson who put her creativity skills and photography together to bring awareness about the condition with a video. Please read and share her story and the video to help her in her initiative.

Broken but determined


Came across this pretty butterfly with a broken wing yesterday. It was a delight to watch it as it seemed to say "My wings might be broken, but they won’t break me!"
Yes, we won't be able to fly much with ‪#‎fibromyalgia‬, but we'll make the most of life with a smile on our face!

Fibromyalgia Guest Post by Louise Willis

Hi Fibro-Folks 
Always wanted to set up a Blog but don't know how - so guest Blogging looks like a first step.

Let me tell you about me - I'm 47 - female and wheelchair bound. Married with two doggies.
I have the condition called Fibromyalgia. The way it's been described to me is my brain fails to process pain signals in the same way as others. This means I suffer pain on a daily basis (so does my husband- but that's marriage!!)

Fibromyalgia Awareness Guest Blog Posts


Fibromyalgia, that affects millions worldwide, still lacks awareness. This leads to fibromyalgia patients, rightly called as fibromyalgia warriors, fighting not just the illness but also the ignorance and indifference. The lack of awareness is adversely impacting the lives of patients worldwide, especially in countries like India where most people have not even heard the name of the invisible illness!

Caring for the Caretakers


For all those who have a chronic illness and a supportive partner, family or friend:

Remember, they are doing their best to help you. So they are doing more than what the partners, families and friends of healthy people are doing. Most of the times they don't say it. But remember, they are exerted too. Coz seeing a loved one in pain that will not go away is very disturbing. Also, doing additional amount of work to help us makes them tired and frustrated too.

Fibromyalgia Patient Interview: Erin Bailey


Meet Erin Bailey, a Fibromyalgia warrior who shares her story and personal tips on living with fibromyalgia.

Erin Bailey - Fibromyalgia Warrior

Something Purple on Fibromyalgia Awareness Day



The Something Purple campaign to mark the Fibromyalgia Awareness Day on 12th May is back!

Millions of people suffer from fibromyalgia that is aptly called Invisible Illness. Yet, there is lack of awareness in most places.

This Fibromyalgia Awareness Day, 12th May 2015, let's have Something Purple to support awareness. Here's a poem on some tips. Just have Something Purple, click a pic posing with it and share it on our Facebook Page.

We shall create a collage of all the pics and share it on our Facebook page as a lovely memory.

11 Tips to plan a day out when you have #Fibromyalgia


With Fibromyalgia, stepping out everyday is not possible for every warrior. Yet, there are days when you want to step out and get some fresh air. Be it your birthday, an anniversary, a little picnic or even grocery shopping, it's a special occasion when a fibromyalgfia warrior needs to spend the entire day out of home.

Here are 11 Tips to smartly plan a day out when you have #Fibromyalgia:

Are you unknowingly torturing someone with Fibromyalgia?


If you know someone with Fibromyalgia, please understand that those with this illness have difficulty doing certain things which appear too easy to you. There are some days they can manage even with extreme pain, but most days, they simply can't. Yet, if you say that you want them to do something, they might go out of their way to do it and spoil their symptoms further. And the fact is that while they will always try their best to care for people, people take their illness for granted and don't care about them.

IN A SINGLE DAY, FIBROMYALGIA PATIENTS CANNOT - wake up the kids, get them ready, cook breakfast, serve stuff, clean house, take care of unwell people at home, visit doctors, get groceries, work from home / do full-time / part-time job, do the dishes, talk to clients / relatives, cook lunch, snacks, dinner, remember to do several things, be active all through the day, go for walks, sleep on time and stay or look happy.

Let me look good | Poem

We, with invisible illnesses, don't and we won't look sick. So the day we feel a bit better, we dress up for ourselves, wear that smile and do what we like.

We hope people take those with invisible illnesses seriously.

Here's a list of some invisible illnesses: 
  1. Allergies
  2. Attention Deficit Disorder and ADHD
  3. Arachnoiditis
  4. Asperger Syndrome
  5. Asthma
  6. Cancer
  7. Celiac
  8. Chronic Fatigue Syndrome (CFS)
  9. Crohn's disease
  10. Chronic Myofascial Pain
  11. Colitis
  12. Depression and Mental Illness
  13. Diabetes
  14. Fibromyalgia
  15. Headaches, Migraines, etc.
  16. Heart Conditions
  17. IBS and Food Intolerance
  18. Idiopathic Intracranial Hypertension 
  19. Infertility
  20. Lupus
  21. Lyme Disease
  22. Multiple Sclerosis
  23. Neurological Conditions
  24. Renal failure
  25. Rheumatoid Arthritis
  26. Schizophrenia
  27. Sjogren’s Syndrome
  28. Sleep disorders


Taking the #FibromyalgiaPalmChallenge to the next level


Do you know a celebrity personally? An actor, author, musician, painter, mayor, senator, dancer, singer, speaker...? Someone who can take the #FibromyalgiaPalmChallenge, tag others and help us reach the next stage? Can you ask them to take the challenge and encourage others to do so?

OR

Valentine's Day True Love Contest 2015



We are glad to announce and invite entries from Fibromyalgia Warriors for the third year of our Valentine's Month contest. The True Love Contest 2015 is a lovely contest just for those who have Fibromyalgia!

This year, we will announce winners in Two Categories, both of which involve Tagging your friends / family / acquaintances on Facebook
Category 1: Express & Tag (words or poems)
Category 2: Take #FibromyalgiaPalmChallenge as a Couple & Tag Friends

More about the contest:

Fibromyalgia Patient Interview / Story 7: Brandi Clevinger

Name: Brandi Clevinger
Gender: Female | Age: 33
Location: (City / State / Country): Charleston, South Carolina, USA
Occupation:  Stay at Home Mom, Blogger
Kind of occupation: Full Time
Year when symptoms started: Summer 2006
Diagnosed in: Winter 2012
Marital Status: Married

Short Stories - Reminder Notes

Janice knew that look. She hated it. The slightly raised eyebrows, the slightly tilted head and that rather long glare made her feel like disappearing immediately. That accusatory look was not new to her. She never lied. Why should she? But she forgot things, not all, but a few. The ones that she should not forget. The ones that involved those people who were not so understanding. She had also started getting confused more often lately.