A major population has never even heard the word Fibromyalgia. So I explain the condition depending on the person who I need to tell. The simplest things I use depending on the time and relationship with the person include:
- "I have fibromyalgia which essentially means I am in pain all the time along with many other symptoms ranging from sleep issues to memory problems to hypersensitivity to light and sound. My daily pain is like what one has when one is down with very high fever and bodyache which is quite tolerable for me now, but when I start mentioning that pain is bad, it means I should have been in bed many hours ago."
- "Please let me know if you would like to know about it in short or in detail. I really don't wanna bore you." That way I can describe as per the person's willingness.
- "Ever had an unbearable toothache? I have that kinda pain almost everywhere, all the time... that's just one of the symptoms of Fibromyalgia. I can't stay in the same position for long and definitely cannot overexert myself physically or emotionally. And there are so many 'simple' tasks that are really very difficult for me. There are a lot many symptoms and I can send you a link if you wanna know in detail."
Have you tried explaining Fibromyalgia? What are your suggestions?