Fibromyalgia Awareness | Information, Tips, Support, Patient Stories

Dedicated to raise awareness about Fibromyalgia and offer online support. Find fibromyalgia information, news, interviews and tips.

Fibromyalgia Guest Post by Louise Willis

Hi Fibro-Folks 
Always wanted to set up a Blog but don't know how - so guest Blogging looks like a first step.

Let me tell you about me - I'm 47 - female and wheelchair bound. Married with two doggies.
I have the condition called Fibromyalgia. The way it's been described to me is my brain fails to process pain signals in the same way as others. This means I suffer pain on a daily basis (so does my husband- but that's marriage!!)
 
I was diagnosed in 2012 after a particularly stressful series of events. I lost the sensations to my right lower side in 2014 - became wheelchair bound. Prior to this, I was in a highly responsible job earning good money and merrily laughing through life. So that's me. 
 
Since these changes I have been on a roller coaster ride of hospital tests and emotions.
In this Blog I want to share the things no one told me but I wish I had known as well as small things that work for me - I'm not medically trained or do I claim to be more knowledgeable than anyone else. I don't promise they will work or that you haven't heard it all before but I've had no people for guidance and if I can help just one person on this journey then it's been worthwhile.

The key is the word 'Journey' - I have learned that fibromyalgia has no destination. You may find things to help and relieve symptoms but it's always there. To begin with I assumed I would be 'cured' - not like bacon! I mean set free one day to live without that nagging pain.
 
Take it from me - it doesn't work that way...
 
Taking each day as it comes helps with pacing yourself to make it more bearable. (I will talk more about pacing next time- if I'm invited to guest blog again!)
 
The biggest thing I have learned is to stop looking behind you to what you used to have/do and start looking ahead. Simply taking the word 'can't' out and replacing it with 'can try' makes all the difference. If you can work to change the way you think - then that's the first step to feeling better. 
 
Sounds simple - just try it till - for small things... For example - I can't be bothered to put on make up at home.. But I can try! Then smile and do it! You'll be surprised at the results (and if you're male - trust me so will your wife or partner!). 
 
Let me know what you've tried and I hope you'll stay with me along the next Blog and share my journey. So remember, be kind to your body - after all where else are you going to live. 
 
Till next time xxx Pink Lady Lou xxx
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Thanking Louise Willis aka Pink Lady Lou for this Guest Post.
Image courtesy of Sira Anamwong at FreeDigitalPhotos.net

Fibromyalgia Awareness Guest Blog Posts


Fibromyalgia, that affects millions worldwide, still lacks awareness. This leads to fibromyalgia patients, rightly called as fibromyalgia warriors, fighting not just the illness but also the ignorance and indifference. The lack of awareness is adversely impacting the lives of patients worldwide, especially in countries like India where most people have not even heard the name of the invisible illness!

If you are a warrior or caretaker, you know what we mean. If you are a blogger there's so much power in your hands to do your bit in raising awareness.

So we invite you to write a guest blog post on our blog www.fibromyalgiaawareness.com. Talk about the illness or how it impacts your everyday life or your personal tips or the need for awareness or being a caretaker. No product promotions please. We'll publish your post on the blog and ensure it gets enough visibility by sharing it in our Facebook Page, Twitter Page and our Google Plus Page. You can also share it on social media / email to your friends so that more and more people learn about it.

There are just 4 conditions:
1. Keep it original, do not copy-paste things from elsewhere.
2. SHARE the posts submitted by others too and they will be doing the same so that together we all will help our efforts be seen.
3. Use the hashtag #FibromyalgiaAwarenessBlog while sharing it online.
4. Try to write in less than 500 words.

So what are you waiting for? Simply send us your post on contact@fibromyalgiaawareness.com by 30th June 2015.

Image courtesy of Chaloemphan at FreeDigitalPhotos.net

Caring for the Caretakers


For all those who have a chronic illness and a supportive partner, family or friend:

Remember, they are doing their best to help you. So they are doing more than what the partners, families and friends of healthy people are doing. Most of the times they don't say it. But remember, they are exerted too. Coz seeing a loved one in pain that will not go away is very disturbing. Also, doing additional amount of work to help us makes them tired and frustrated too.

Fibromyalgia Patient Interview: Erin Bailey


Meet Erin Bailey, a Fibromyalgia warrior who shares her story and personal tips on living with fibromyalgia.

Erin Bailey - Fibromyalgia Warrior

Something Purple on Fibromyalgia Awareness Day



The Something Purple campaign to mark the Fibromyalgia Awareness Day on 12th May is back!

Millions of people suffer from fibromyalgia that is aptly called Invisible Illness. Yet, there is lack of awareness in most places.

This Fibromyalgia Awareness Day, 12th May 2015, let's have Something Purple to support awareness. Here's a poem on some tips. Just have Something Purple, click a pic posing with it and share it on our Facebook Page.

We shall create a collage of all the pics and share it on our Facebook page as a lovely memory.

Fibromyalgia Products By Hopasholic