Fibromyalgia Awareness | Information, Tips, Support, Patient Stories

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50 Activities / Things that #hurtwithfibromyalgia

Several things hurt most Fibromyalgia warriors on a daily basis. While a handful of patients are able to manage the condition somehow, most have unbearable pain and many other symptoms 24x7. Listing some things that are painful for most Fibromyalgia warriors - a quick reference for the #hurtswithfibromyalgiachallenge.

1.   Getting out of the bed
2.   Sleeping
3.    Standing for over half an
4.    Cutting vegetables
5.    Walking
6.    Exercising
7.    Combing hair
8.    Bathing
9.    Holding a child
10. Lifting shopping bags
11. Driving
12. Sitting in a theatre for
the entire movie
13. Climbing stairs
14. Typing
15. Using mobile phones for
16. Stirring while cooking
17. Weather changes
18. Bright sunlight
19. Writing
20. Holding a book to read
21. Reading on kindle
22. Dusting
23. Sweeping
24. Brushing teeth
25. Holding the handles while
travelling standing in a bus / train
26. Lying down for too long
27. Lifting a coffee mug
28. Swimming
29. Cycling
30. Chopping vegetables
31. Most footwear
32. Tags on clothes
33. Slightly tight clothes
34. Opening doors
35. Opening some taps
36. Dancing
37. Desk job
38. Field job
39. Holding a camera
40. Most arts and crafts
41. Outdoor games
42. Indoor games
43. Hosting guests
44. Holding a trophy
45. Hard mattresses
46. Hard seats
47. Remembering things
48. Using scissors
49. Sewing
50. Opening jars

#HurtsWithFibromyalgia Challenge

#HurtsWithFibromyalgia Challenge
The easiest challenge ever for the most complicated invisible illness.

12th May is International Fibromyalgia Awareness Day. Have you and your friends heard about Fibromyalgia? Do you know that it is incurable and invisible? Do you know what exactly it is?

Fibromyalgia warriors across the world are suffering every minute. The 24x7 torture by the illness is one thing that we are living with. Problems in relationships and jobs are other issues. But what hurts most is that nobody believes we are sick. We just don’t look sick and people just don’t know what Fibromyalgia is all about.

No, we don’t need those big donations, after all, there’s no big surgery required to cure us. All we need is a little trust when we say we are sick which is only possible when there is clear understanding of the condition. Understanding by the people that we are not lazy but we are unable to do the simplest of tasks. Understanding of this complicated illness so that no one goes undiagnosed. Understanding of this illness by one and all so that fibromyalgia patients need not struggle to explain the umpteen symptoms to anyone who asks what are they suffering from.

No big company or celebrity or brand has yet done anything big to help us raise awareness. So, we have taken it on ourselves to do so. Will you support us in raising awareness about Fibromyalgia across the world? Please take this simplest ever challenge that aims only to make the world understand what fibromyalgia is all about and what are the challenges faced by the patients. No donation involved. We just want everyone to understand.

#HurtsWithFibromyalgia Challenge
An initiative by
Facebook | Twitter 

It's very simple! Post a photo doing any daily activity and use the hashtags #(activity) #hurtswithfibromyalgia. Tag and challenge your friends or celebrities. You can take the challenge on Facebook, Twitter, Instagram, Snapchat...

The point? Every task, big or small, is very painful for most fibromyalgia warriors. So whether it is being able to move out of the bed in the morning or preparing a cup of tea or typing all the words you have read in this post, it is quite painful. Basically, everything you do in a day is painful for fibromyalgia patients. Yes, even sitting idle for a while! For a quick reference, we have jotted down a list of activities / things that hurt with Fibromyalgia on this link.

So, post a photo of yourself or your friends doing any activity. It’s as simple as that!
Remember to use the hashtags #(activity) #hurtswithfibromyalgia. Tag and challenge your friends or celebrities.
Example: #cooking #hurtswithfibromyalgia

We hope you will help us raise awareness about Fibromylagia, an invisible, incurable illness.

A fresh cup of tea

She woke up early in the morning and made herself a fresh cup of tea. Feeling refreshed, she went for a jog and returned in an hour. She decided to prepare a four-course meal for the guests arriving for lunch. She was quite excited about the eventful day as they had planned a trek in the woods.

She woke up for the 3rd time in the middle of the night and was glad that she doesn't have #fibromyalgia in her dreams!

Because of the constant pain, fever, hypersensitivities, insomnia, cognitive problems, chronic fatigue and endless symptoms, most Fibromyalgia warriors do not get proper sleep, are unable to do many things in the mornings, can't prepare elaborate meals or even a cup of tea at times, can't plan things in advance as pain levels keep changing and hosting guests is a tough task for them.

But, we love to dream and even if it's a nightmare we are glad we don't have Fibromyalgia symptoms in dreams!

The F word

The F word.

Used by a few.
Hated by many.
Ignored by some.
Misinterpreted aplenty.

The F word.

Makes people judge people.
Makes people discriminate people.
Makes people respect people.
Makes people inspire people.

The F word.

For many, it stands for #Fibromyalgia.
For many, it's not just a word.
It's a life changing curse.
It's hell of a world.

10 Things To Consider When You Have Chronic Illness

If you have a chronic illness, I am certain there was a time when you were very active and managed to do just about everything in a day. It's tough to come to terms with the limited abilities of our body. So while it's considered good to push ourselves, we must ascertain that we do not do so in a way that harms us. Like in the case of fibromyalgia - Exercise does not work for everyone.

The key mantra is - LISTEN TO YOUR BODY!

Here is a list of 10 things you should consider to ensure you take good care of yourself:
  1. Say YES only when your body says you can.
  2. REST after doing what you decided to do.
  3. Learn to say NO when you can't.
  4. Make NOTES and remember to refer them.
  5. IGNORE indifferent people and comments. Tough, but TRY.
  6. Try not to EXPECT anything from anyone.
  7. EAT well.
  8. WALK whenever you can.
  9. PLAY. Even if it's on your phone.
  10. Try to SLEEP.

Have a take-care-of-yourself day. EVERYDAY.

Feel free to share your tips in the comments below or on our Facebook Page so that we can learn from each other.

Image courtesy of FrameAngel at